Advocacy Blog Archive
Topic: Advocates

Congressional briefing wrap-up: Increasing Kidney Transplants in Communities of Color

Author: Kate Tremont  |  Posted:

As part of Kidney Action Week, we hosted a Congressional briefing on Increasing Kidney Transplants in Communities of Color. The goals of the briefing were to educate viewers about this important issue, provide recommendations for policymakers and inform people of color of ways they can advocate for themselves. READ MORE >>

TOPICS: AKF Advocacy Activities, Ambassador, Congressional Update, Advocates, Health equity

Ambassador spotlight: Dennis Harris

Author: Dennis Harris  |  Posted:

AKF Ambassador Dennis encourages people newly diagnosed with kidney disease to not get overwhelmed by the flood of information in the beginning. "Know there are options out there that can help you live a normal life." Learn more from Dennis in his Ambassador spotlight. READ MORE >>

TOPICS: Ambassador, Spotlight, Advocates

Ambassador spotlight: LeighAnn Saylor and Marie Drain

Author: LeighAnn Saylor and Marie Drain  |  Posted:

"The more we make our voices heard, the harder it is for others to dismiss the needs of kidney patients. Ambassadors bring understanding, since this illness is one that is not always outwardly seen." AKF Ambassadors Marie and LeighAnn discussed the importance of advocating for yourself and other people living with kidney disease on our Advocacy blog. READ MORE >>

TOPICS: Ambassador, Spotlight, Advocates

Ambassador spotlight: Amelia Rowniewski

Author: Amelia Rowniewski  |  Posted:

Kidney disease "uproots the lives of children, taking them from playing doctor one day to barely being kept alive by doctors the next." Learn why 15-year-old Amelia became an AKF Ambassador "to be a voice for pediatric kidney patients" in her Ambassador spotlight. READ MORE >>

TOPICS: Ambassador, Advocates, Spotlight

Ambassador spotlight: Tamara Walker

Author: Tamara Walker  |  Posted:

"I wish elected officials were aware that dialysis patients are exhausted...and that being on dialysis changes patients’ lives forever," says AKF Ambassador Tamara Walker. She joined our Advocacy Network to raise kidney disease awareness, especially among legislators who have the power to make real change for people like her. Learn more in Tamara's Ambassador spotlight READ MORE >>

TOPICS: Ambassador, Advocates, Spotlight

AKF Ambassadors advocate for critical legislation during Kidney Action Summit

Author: Kate Tremont  |  Posted:

Kidney Month is a time for raising awareness about issues that matter to people with kidney disease. We brought that awareness to Capitol Hill earlier this month so AKF Ambassadors could discuss with their lawmakers two pieces of legislation that are critically important to people living with kidney disease, living organ donors and their families. READ MORE >>

TOPICS: Advocacy day, Ambassador, Advocates

Ambassador spotlight: Nikki Grotenhuis

Author: Nikki Grotenhuis  |  Posted:

Nikki became interested in organ donation through her work at a radio station. Doing research before she interviewed someone who needed a kidney, she "realized how small of a sacrifice it was to be able to give the gift of life." She became a living kidney donor earlier this year and joined our Advocacy Network to do even more. READ MORE >>

TOPICS: Ambassador, Advocates, Spotlight

Ambassador spotlight: Timothy Atkins

Author: Timothy Atkins  |  Posted:

AKF Ambassador Timothy says that "deciding to take an active role in advocating for your health care and joining with a larger group working toward a common goal is when change can occur." Learn more about Timothy and his experience in our Advocacy Network on our blog. READ MORE >>

TOPICS: Ambassador, Advocates, Spotlight

Ambassador spotlight: Jess Walters

Author: Jess Walters  |  Posted:

Jess Walters is an AKF Ambassador living with Alport syndrome, a rare disease that causes kidney disease. Jess says, "Being chronically ill can be extremely disempowering. Being an AKF Ambassador is a surefire way to know that your voice is being heard and your story is being told." Learn more about Jess and their advocacy work on our blog. READ MORE >>

TOPICS: Ambassador, Spotlight, Advocates
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