Learn about best practices in engaging your elected officials, and the public policy issues affecting health care and kidney disease.
Dean is a retired Branch Manager for Canon Business Solutions. Before, and since retiring in Feb 2018, he was involved with Bladder Cancer Action Network as a patient advocate receiving PCORI training and working with pharmaceutical companies providing the patients perspective as new cancer therapies are developed and readied for market. READ MORE >>
TOPICS: Advocates, Ambassador, Spotlight
Nieltje Gedney spent 20 years avoiding dialysis, and then found herself in the ER a year ago, crashing, and placed on emergency hemo. After starting home hemo, she felt great! Nieltje is no newcomer to advocacy work, just to dialysis, and is really enjoying her role as Home Dialyzors United’s current Treasurer and past Vice President and working on the Policy and Advocacy Committee. READ MORE >>
TOPICS: Advocates, Ambassador, Spotlight
Frances Ashe-Goins, a public health expert with years of experience working at the U.S. Department of Health and Human Services, and also serving as a college professor, is the mother and caregiver of a daughter who is living with from kidney failure. READ MORE >>
TOPICS: Ambassador, Spotlight
Ellery Payton has been an Ambassador with AKF for 12 years. He is a two-time kidney transplant recipient, one in March 2003 and another in 2012. Ellery takes pride in working with AKF and is always willing and able to do what’s necessary to get the word out. READ MORE >>
TOPICS: Advocates, Ambassador, Spotlight
The American Kidney Fund (AKF) submitted a comment letter to the Center for Medicare & Medicaid Services (CMS) regarding their proposed rule on the End-Stage Renal Disease (ESRD) Treatment Choices Model (ETC model). READ MORE >>
TOPICS: Legislation, Policy, Medicaid, Medicare
Christopher Knippers has worked for over 40 years in the field of psychology (Ph.D. in Clinical Psychology) as a specialist in mood disorders, addiction, and holistic health. He has published several non-fiction books (e.g. Common Sense, Intuition, and God’s Guidance) as well as a novel (Aloha Kai: An Adventure in the Power of Aloha). READ MORE >>
TOPICS: Advocates
According to a new analysis from the U.S. Department of Health and Human Services (HHS), extending Medicare immunosuppressive drug coverage for kidney transplant recipients for more than three years post-transplant would result in Medicare savings of $73.4 million over 10 years. READ MORE >>
TOPICS: Policy, Medicare
