As the Trump Administration moves to implement its Advancing American Kidney Health initiative, it has asked for input from patient organizations like the American Kidney Fund (AKF). We submitted comments on two recent proposals from the Administration that are intended to increase the number of kidneys available for transplant. READ MORE >>TOPICS:
Learn about best practices in engaging your elected officials, and the public policy issues affecting health care and kidney disease.
Update March 12, 2020: H.R. 5534 passed unanimously in the House Energy and Commerce Health Subcommittee on March 11. Extended Medicare coverage of immunosuppressive drugs will help kidney recipients avoid situations where they struggle to pay for their needed medications and other necessities. READ MORE >>TOPICS: Funding & Appropriations, Medicare
Ken Sutha, who was honored as AKF’s 2019 Hero of Hope, was first diagnosed with kidney disease at 10 years old. He received a transplant from his father in 2006, which lasted for 10 years, and got his second transplant in July 2018. Dr. Sutha currently works as a pediatric nephrologist and an organoid researcher. READ MORE >>TOPICS: Ambassador, Spotlight
Dean is a retired Branch Manager for Canon Business Solutions. Before, and since retiring in Feb 2018, he was involved with Bladder Cancer Action Network as a patient advocate receiving PCORI training and working with pharmaceutical companies providing the patients perspective as new cancer therapies are developed and readied for market. READ MORE >>TOPICS: Advocates, Ambassador, Spotlight
Nieltje Gedney spent 20 years avoiding dialysis, and then found herself in the ER a year ago, crashing, and placed on emergency hemo. After starting home hemo, she felt great! Nieltje is no newcomer to advocacy work, just to dialysis, and is really enjoying her role as Home Dialyzors United’s current Treasurer and past Vice President and working on the Policy and Advocacy Committee. READ MORE >>TOPICS: Advocates, Ambassador, Spotlight