Children sometimes have symptoms of ADPKD, but people with the disease usually do not notice symptoms until they are between 30 and 50 years old. Symptoms might include:

If you have any of these symptoms, contact your health care provider. He or she may want to test for kidney problems. If your health care provider thinks ADPKD may be causing your symptoms, he or she may want you to have one or more of the following tests:

  • Imaging tests, such as ultrasound, CT scans and MRI scans
  • Genetic tests, using a sample of your blood or saliva (spit)

The imaging tests may be done to look for visible signs of cysts in your kidneys. The genetic tests can tell your doctor exactly what kind of PKD you have or if you are likely to develop the disease in the future. It can take months to get the results of genetic tests.