As a patient services advocate who works with potential transplant recipients at a major hospital, I spend a lot of time correcting misperceptions and educating patients about what they need to do to get on the transplant list. As a kidney transplant recipient, I have a lot of “inside knowledge” that I readily share with anyone who will listen. READ MORE >>TOPICS: Living with kidney disease, Stories, Kidney transplant, Kidney failure
Kidney Today from the American Kidney Fund brings you voices from the fight against kidney disease—patients, their loved ones, renal professionals and many others.
Dialysis, isolation, depression, anger. Each of these words has a separate meaning but they seem to go hand-in-hand with each other. For many dialysis patients, these words combine to form a “new normal” state brought on by living with kidney failure. READ MORE >>TOPICS: Living with kidney disease, Stories, Kidney failure
It took Steve Winfree of Knoxville, Tennessee, 12 years to be comfortable talking about living with kidney disease. “I want my story to be proof that kidney disease is not a period in my life, but rather a comma just before the next amazing journey in my life.” READ MORE >>TOPICS: Living with kidney disease, Stories
Last week, to kick off National Kidney Month, American Kidney Fund (AKF) patient-advocates from around the country came to Washington to educate their elected officials about the financial challenges kidney patients experience, and to urge lawmakers to put an end to discriminatory practices among some health insurers. READ MORE >>TOPICS: Advocacy and policy, News, Living with kidney disease, Stories, Kidney disease prevention
A diagnosis of kidney disease often comes as a shock, but you don’t have to face it alone. Our Facebook community includes thousands of people who are living with kidney disease or kidney failure. We recently asked what advice they would give someone who is newly diagnosed. READ MORE >>TOPICS: Kidney Kitchen, Living with kidney disease, Healthy eating, Healthy living, Kidney failure
Julie Lippke and her daughter Alexandra, an eighth-grader, are taking on the challenge of hiking Hadrian’s Wall in northern England during Alexandra’s spring break this month. They are doing it to test their own limits—and to honor Alexandra’s grandfather Jerry Lippke, who has been living with kidney failure for over five years. READ MORE >>TOPICS: Stories, KIDNEYNATION, Kidney failure
Anytime we hear about someone who suffers from a chronic disease, it’s easy to use the disease as a label to describe the person: “There's so and so, she has cancer,” or “He’s a diabetic.” Everyone is guilty of doing this at one time or another, and I have noticed that many doctors unknowingly make this mistake, too. READ MORE >>TOPICS: Living with kidney disease, Stories, Kidney failure