My name is Beth Nalker, and I’m fortunate to call myself Henry’s mother. When Henry was diagnosed at age five with progressive kidney disease by doctors at Walter Reed National Military Medical Center, my husband and I learned that our family had begun a lifelong journey involving Henry’s kidneys. READ MORE >>TOPICS: Living with kidney disease, Stories, Kidney failure
Kidney Today from the American Kidney Fund brings you voices from the fight against kidney disease—patients, their loved ones, renal professionals and many others.
My name is Henry Nalker and I was born with a rare disorder called Joubert syndrome, which is a neurological disorder that can also involve kidney, retina and/or liver disease. At age five, my family and I found out that I have a progressive form of kidney disease genetically linked to my Joubert syndrome. READ MORE >>TOPICS: AKF programs, Living with kidney disease, Stories
Nina Martinez made history in March as the first person with HIV to become a living kidney donor. She told AKF that the decision to donate her kidney was “a long time coming.” While she has been called a hero in stories about the transplant, she feels “it’s not heroic to help someone who needs help”—it is just the right thing to do. READ MORE >>TOPICS: Kidney transplant, Kidney failure
Learning you have kidney disease often leaves people with many questions. Dr. Delphine Tuot, an experienced nephrologist, answered questions about kidney disease from the AKF community. READ MORE >>TOPICS: Kidney Kitchen, Education, Living with kidney disease, Kidney disease prevention, Kidney failure
Jeff Pearlman's wife donated her kidney to a complete stranger. The story dates back several months, when Catherine was sitting in a Starbucks. She was doing our friend Bev a favor, and had a moment to spare, so it wasn’t a coffee shop she often frequents. Read more. READ MORE >>TOPICS: Stories, Kidney transplant
Read Matt Schneider's blog about his journey with kidney disease and why it inspired him to take a trip across the country to raise awareness on organ donation and encourage others to register as organ donors. READ MORE >>TOPICS: Dialysis, Living with kidney disease, Stories, Healthy living, Kidney transplant, Kidney failure