Kidney Today Blog Archive
Topic: Stories

5 things you should know if you want a kidney transplant

Author: Elaine Milem  |  Posted:

As a patient services advocate who works with potential transplant recipients at a major hospital, I spend a lot of time correcting misperceptions and educating patients about what they need to do to get on the transplant list. As a kidney transplant recipient, I have a lot of “inside knowledge” that I readily share with anyone who will listen. READ MORE >>

TOPICS: Living with kidney disease, Stories, Kidney transplant, Kidney failure

An open letter to my chronic disease

Author: Steven Winfree  |  Posted:

It took Steve Winfree of Knoxville, Tennessee, 12 years to be comfortable talking about living with kidney disease. “I want my story to be proof that kidney disease is not a period in my life, but rather a comma just before the next amazing journey in my life.” READ MORE >>

TOPICS: Living with kidney disease, Stories

AKF Advocates make their voices heard on Capitol Hill

Author: AKF Staff  |  Posted:

Last week, to kick off National Kidney Month, American Kidney Fund (AKF) patient-advocates from around the country came to Washington to educate their elected officials about the financial challenges kidney patients experience, and to urge lawmakers to put an end to discriminatory practices among some health insurers. READ MORE >>

TOPICS: Advocacy and policy, News, Living with kidney disease, Stories, Kidney disease prevention

Mom, daughter hike for kidney disease awareness

Author: AKF Staff  |  Posted:

Julie Lippke and her daughter Alexandra, an eighth-grader, are taking on the challenge of hiking Hadrian’s Wall in northern England during Alexandra’s spring break this month. They are doing it to test their own limits—and to honor Alexandra’s grandfather Jerry Lippke, who has been living with kidney failure for over five years. READ MORE >>

TOPICS: Stories, KIDNEYNATION, Kidney failure

I am not my disease: life as a dialysis mom

Author: Cortney Smith  |  Posted:

Anytime we hear about someone who suffers from a chronic disease, it’s easy to use the disease as a label to describe the person: “There's so and so, she has cancer,” or “He’s a diabetic.” Everyone is guilty of doing this at one time or another, and I have noticed that many doctors unknowingly make this mistake, too. READ MORE >>

TOPICS: Living with kidney disease, Stories, Kidney failure

Kidney Donation: Both Sides Now, Part 1

Author: Richard Patterson, Jr.  |  Posted:

There are two sides to every kidney donation story—the selfless decision made by the donor and the priceless gift received by the recipient. Richard Patterson, Jr. received a kidney from his son, Richard Patterson III, in June 2014. In Part 1, Richard Patterson, Jr. tells his story of cancer and kidney failure, and eventually receiving his transplant. READ MORE >>

TOPICS: Living with kidney disease, Stories, Kidney transplant

4 Things You Should Understand About Living with Kidney Disease

Author: AKF Staff  |  Posted:

A simple question—“What do you wish others understood about living with kidney disease?”—unleashed a torrent of comments on our Facebook page recently. Kidney disease itself is often invisible until the late stages; once it progresses to kidney failure, patients need dialysis or a transplant to live. People living with kidney disease and kidney failure tell us they often feel that others do not understand what they are going through, both physically and emotionally. READ MORE >>

TOPICS: Living with kidney disease, Stories, Kidney failure
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