Cystinosis guide for teens

Cystinosis is a rare genetic condition. A genetic condition means that it is passed down through families. Cystinosis leads to a buildup of cystine (a natural protein in your body) in a part of your body’s cells called lysosomes. As cystine builds up, it forms crystals that cause the cells to die. Eventually, these dying cells can cause damage to organs, including your kidneys and liver.