Talking about growing up with a rare kidney disease
An amazing thing about people is that we are all different! We have different strengths and interests that make us unique. Sometimes, we can control these things but not always. Having a rare kidney disease is one difference you might be living with.
Download our guide on why it is important to talk about growing up with a rare disease
If you have a rare disease, your life might look different than your friends or family members. You may take a lot of medicines, miss school regularly for doctor’s visits or have days when you feel tired or are in a lot of pain. There may also be things you’re not able to do like playing sports or eating some kinds of food.