AMKD Awareness Day
Thank you for participating in AMKD Awareness Day!
Save the date for the next APOL1-Mediated Kidney Disease Awareness Day on Tuesday, April 27, 2027.
What is AMKD?
APOL1-mediated kidney disease (AMKD) is a serious and rapidly progressive genetic kidney disease caused by changes (variants) in the APOL1 gene. If you’re Black, African American, African, Afro-Caribbean, or Latina/Latino and have West or Central African ancestry, you’re more likely to have inherited variants in that gene. And if you have variations in both copies of the gene, you’re at greater risk (1 in 5) of developing AMKD.
Be APOL1 aware
Being APOL1 aware means knowing how your genes impact your kidney health. Knowing whether you have the APOL1 variants that cause AMKD could keep your kidneys working longer. If you have kidney disease or if your family member does, consider asking about genetic testing.
The Kidney Collective
Alonzo Mourning, Basketball Hall-of-Famer diagnosed with AMKD & paid spokesperson for Vertex Pharmaceuticals, discusses APOL1-mediated kidney disease, his kidney transplant, and his service to others as part of The Kidney Collective’s second podcast season, “Rare Voices, Relatable Stories”.
Episode sponsored by Vertex Pharmaceuticals
AMKD Beyond the diagnosis: Stories of living with AMKD
We’re elevating the voices of the AMKD community to raise awareness and inspire action. Read their stories.
Resources for Kidney Professionals
In addition to the genetic counseling guide available for your patients, AKF's webinar provides an overview of on APOL1-mediated kidney disease and implications for patient care and accompanying summary are available for health care professionals.
Advocacy Actions
Your help is needed to help advocate for the passage of the following bills pending in Congress:
AMKD Awareness Day supporters
We appreciate all of the organizations supporting awareness of APOL1-mediated kidney disease.
