Take action in your state
Make a difference in the lives of kidney patients and living organ donors by communicating with your state and local officials.
Welcome to the American Kidney Fund’s Action Center.
Keeping policymakers informed is critical in the fight against kidney disease. Add your voice to thousands of other voices in our Advocacy Network and help us make a difference! Use the Action Alerts below to send personalized messages to your representatives in Congress on key issues affecting kidney patients and their families.
Medicare’s prescription drug program, Part D, is an essential program that provides coverage for critical prescription medications. However, within the current Part D benefit structure, there is no true annual out-of-pocket (OOP) cap for beneficiary cost-sharing, which cause a significant financial burden for people with serious medical conditions like kidney failure. As Congress continues to consider legislation to pass, it is important that they include a redesign on the Part D program. Contact your elected officials today.
TOPICS: Medicare, Prescription drugs
Chronic kidney disease (CKD) is one of the leading causes of morbidity and mortality worldwide and a significant number of cases are from an unknown cause. The American Kidney Fund is working to help identify why so many patients get CKD, and genetic counseling has a powerful role to play in that endeavor. The Access to Genetic Counselor Services Act of 2021 (H.R. 2144\S. 1450) would change Medicare law so the program would recognize genetic counselors as health care providers so they can be reimbursed directly by Medicare. This would allow more people with kidney disease to have access to genetic testing to discover the cause of their CKD.
TOPICS: Medicare, Kidney disease prevention & education
Congress should do more to address kidney disease in the United States. We need more research so we can find a cure. We need to protect living donors from discrimination. We need to ensure that kidney patients have access to the affordable and high quality health care. Please email your members of Congress today and urge them to remember kidney patients.
TOPICS: Kidney disease awareness, Kidney disease prevention & education
The Chronic Kidney Disease Improvement in Research and Treatment Act of 2021 (H.R. 4065/S. 1971) aims to improve the lives of those with kidney disease. The legislation would increase awareness of kidney disease and expand preventative services. Please contact your federally elected officials and ask them to cosponsor this important legislation.
TOPICS: Medigap, Medicare, Kidney disease awareness, Kidney disease prevention & education, Insurance, Transplants
The U.S. House of Representatives recently passed H.R. 4502. The legislation included $49 billion for the NIH, with a 5% increase to the National Institute of Diabetes, Digestive and Kidney Diseases. This legislation has now been referred to the Senate. Please urge your Senators to vote for adequate funding for kidney research when these yearly bills are debated and enacted.
TOPICS: Research, Appropriations
On June 16, 2021, Delaware Congresswoman Lisa Blunt Rochester and Ohio Congressman Brad Wenstrup introduced H.R. 3893, the Coordination, Accountability, Research, and Equity (CARE) for All Kidneys Act of 2021. The American Kidney Fund worked closely with the bill sponsors on this important bill which would implement interventions to better understand and manage kidney disease in communities of color, rural communities, and other underserved communities nationwide. Please contact your U.S. Representative today and ask them to cosponsor this important piece of legislation.
TOPICS: Research, Kidney disease prevention & education, Health disparities, Transplants
S.1002, the Junk Plans Accountability and Disclosure Act of 2021, seeks to increase the accountability and disclosure requirements for junk health care plans, as well as to ensure that consumers receive more information about their insurance options and what would be considered comprehensive health insurance coverage. It is critically important that consumers are fully informed about what health insurance plans they are enrolled in and what those health insurance plans cover. Please contact your Senators today and ask them to cosponsor this important piece of legislation.
During public health emergencies, it is vital that American citizens have access to adequate health insurance coverage. Being covered by a health insurance plan ensures access to primary care doctors, specialists, hospitals, and pharmaceuticals. The Ensuring Coverage in Public Health Emergencies Act of 2021 would trigger a special enrollment period any time there is a public health emergency declaration, ensuring that Americans could have access to the health care they need. Ask your Representative to cosponsor today.
Medigap is private insurance for people who receive Medicare to cover costs that Medicare does not cover. In some states, people with ESRD under the age of 65 cannot enroll in Medigap plans. Without Medigap insurance, ESRD patients can face extremely high out-of-pocket costs with no annual limit, and most transplant centers will not accept people with Medicare onto their transplant list without secondary insurance such as Medigap.
TOPICS: Medigap, Insurance
AKF is leading the charge for federal living organ donor protections to shorten the transplant waiting list and make it easier for people to become living donors. This bill creates a national baseline of protections when choosing this selfless, lifesaving gift.
TOPICS: Living donor protections
Just as many more Americans need Medicaid coverage, states are strapped by pandemic costs and may be forced to cut programs and services, including Medicaid. The federal government can step in and increase its portion financial contribution to states’ Medicaid programs to ensure that all Americans have the health services they need. Please contact your lawmakers today.
TOPICS: Insurance, Medicaid
With the swearing in of a new Congress, it is more important than ever to let your elected officials know that kidney disease is an important issue to you. Please email your members of Congress today and let them know that you are a kidney voter who urges them to take decisive action to help kidney patients.
TOPICS: Kidney disease awareness, Kidney disease prevention & education, Research
During this difficult time of the COVID-19 outbreak, a record number of people have lost their sources of income and thus, their ability to pay for their health insurance. The American Kidney Fund believes that four main insurance provisions should be included in the next coronavirus relief legislation that would better ensure that people can keep their private insurance.
TOPICS: Insurance, COVID-19